Feeds:
Posts
Comments

Archive for the ‘Spinal Stenosis’ Category

Winter is moving in, ahead of the calendar date.  This is “business as usual” in Wisconsin.  We normally have several extra weeks of winter before the December solstice and way after the March equinox.

Winter is beautiful.  Although I no longer “play outside” like I did for many decades, I still appreciate the winter landscape.  Winter walking is a bit treacherous here, on icy paths, but we have a sunny spot by our garage—sheltered from the North wind.  Here Joe and I can sit even on very cold days while our Pembroke Welsh corgi, Dylan, bops around beside us in his little play yard. 

Winter provides extra hobby time, especially when one lives in a compromised body.  I no longer drive across town to some event that I might have attended in the past.  The necessary pain meds limit my driving time and distance.  This equates to many more relaxing hours at home for painting, knitting, playing the piano, reading, blogging, entertaining family members and friends, and simply celebrating the wonder of being alive!  

I have the magnificent option of saying “NO”.  How about you?  Have you discovered the joys of a limited lifestyle?  What are your favorite winter pastimes?  Please share!

Meanwhile, I’m so grateful!

Margaret L. Been, ©2011

Note:  Here is one more inspirational blog, written by another woman who is happily mining treasures in illness and pain —   http://agirlandherbrush:wordpress.com/

Read Full Post »

. . . waking in the morning to the sound of much needed rain,

sharing a breakfast at our local “good old boy” restaurant,

stopping at the library and leaving with 2 heavy sacks of books,

celebrating the progression of summertime in our gardens,

sitting in “our row” in church with 10 great grandchildren—ages 6 and under,

gently stepping back in time at the antique barn up the road,

eating ice cream on the patio, 

sleeping, waking, breathing in and out!

Sweet savor offerings of praise are going up each day!  For five weeks Joe and I have been at home.  This is a record.  Since September, 2010 when I had spinal fusion surgery right up until mid-June, 2011 when Joe had a heart emergency we have not been out of a hospital for more than a month.  The one-month break happened only once.  For the rest of that period we averaged a hospital stay every two to three weeks—with each stay lasting from 2 to 10 days.

I’m not clueless enough to believe this blessed hiatus will last forever.  We live one day at a time, and when a crisis comes we find peace and joy in the midst of whatever God allows in our lives.  But at this moment we are enjoying peace and joy at home, doing “normal” things!  🙂

Margaret L. Been, ©2011

Read Full Post »

Most of us have had friends in need, either due to illness or a crisis.  The question we always ask is, “How can I help?”  Before I experienced the flack and fallout of chronic illness and pain, I asked that question many times—and often did try to “help” in the wrong way. 

Only when we have personally lived through something do we begin to see with sensitive eyes and listen with understanding ears to others who are going through a tough time.  Until we have walked in someone else’s shoes, we can only guess and bumble along.  Here are some things I’ve learned about helping others, from recent health-challenged months and years:

1)  Don’t drop in for unsolicited visits, but rather always ask before coming.  This applies to hospital visits as well as calling at home.  When we are very ill, or recovering from surgery, every breath and every sentence is a supreme effort.  There are some people we will want to see—and some whom we will want to avoid until we feel more energetic.  It pays to have a family member on hand, to monitor our visitors.

2)  Don’t telephone for the first days after an emergency or onset of crisis.  Like personal visits, a telephone call is exhausting when we are compromised physically or emotionally.  Talking is not helpful at those times, for most of us.  Again, a solicitous family member or a telephone answering machine is of crucial importance in the beginning of a siege. 

Of course family members are urged to call at any time.  Later on a call from a kindred spirited friend, one who shares our interests and our zest for living, is welcome. 

3)  Personal visits and phone calls, when they are warranted, should always be upbeat.  No quivery/quavery voices.  Gentle, understanding humor is appreciated more than tears.  We can say, “I love you, I pray for you, and I am here for you” without sounding like the chorus in a Greek Tragedy!

4)  Never comment on a sick friend’s appearance.  This is a rule we should emblazon on our brains.  To say, “But you don’t look sick” is normally misconstrued by the sick person as a denial of the fact that he or she is indeed very ill!  And, “You look great” is often a bold faced lie.  Naturally we are not going to say, “You look awful!”  So it’s best to never comment on appearance!

5)  Do write short, encouraging notes.  Real mail is always a treat, so long as it’s upbeat.  Obviously we should not write to a sick or otherwise suffering friend about our own issues and problems.  It’s best to write about gardens, hobbies, and other fun stuff. 

I always like to know that friends are praying for me when I am going through something.  A Bible verse inserted in a letter is welcome, too—so long as it’s comforting and not preachy!  We must beware of being like Job’s “friends”.

6)  Don’t bring food, unless specifically requested to do so.  Always ask before bringing the soup or whatever!  Unless the sick person has a huge family, food offerings are just too much.  Every sick individual knows what he or she should eat, and no one outside the home can determine that.  We live in a “When in doubt, bring food” culture.  We’d be far better off with far less food! 

When I’m recovering from surgery, or very ill or in excessive pain, food is the last thing I want—and I know just what to consume for my own good:  fruit juices, light soups, lamb loin chops, roast pork or beef, well cooked veggies, and white or part whole wheat dinner rolls.  The trendy food gifts of casseroles loaded with potatoes or pasta, chicken and black bean soup, raw veggie salads, and coarse grained stone-heavy breads would absolutely destroy me! 

But some ice cream or sherbet would probably be appreciated.  🙂

7)  Know your friend’s interests.  If he or she loves house plants, send a plant.  (I love plants!  You can send them to me.)  If the sick person considers house plants to be a burden, don’t send a plant.  I love flowers, and welcome them any time.  Others may not care for them, or may be allergic to flowers. Check that out before calling the florist.

If your friend enjoys the kinds of books you like, a book is a wonderful offering—either as a gift or a loan.  But don’t decide that someone “should” read a certain book for their own good.  That’s presumptuous.  Sick people have no energy for presumptions, or presumptuous “friends”!

8)  If your friend is in for a long spell of illness or pain, offer to get him or her out of the house for a short break.  You cannot imagine how theraputic it can be just to go to a coffee shop for an hour, or have tea at someone else”s home, until you have been under siege of illness or adversity. 

Browsing in a library, antique shop, or hobby store can be wonderful as well.  Recently there were weeks when I could not drive myself anywhere.  When a family member or friend offered to pick me up and take me out for a break, I thought I’d gone to Heaven!

9)  Don’t say, “I’ll do anything to help” unless you really want to help.  If you really want to help, follow up that statement with offers of various ways you could help.  You can write a note saying, “Would you like me to come and help you clean your home?” or “Can I take you out for lunch?”

Those who say, “I’ll do anything to help,” yet never follow up with specific suggestions, can only be discounted as simply not being serious about helping.  I know I’ve been guilty of saying that and not following up—back in my “clueless and healthy” past!

There is nothing wrong with not helping.  But we need to be sincere and only offer help if we intend to deliver!

10)  Do not offer treatment suggestions.  This is a horrendous “no-no”, of which the alternative medicine folks are especially guilty.  I have patiently listened to suggestions ad nauseum, just because my mother taught me to “be polite”.  But I can no longer be polite!  I will be rudely adamant (and adamantly rude!) to anyone who tries to back me into an alternative corner!

I’ve been mis-advised to rub oregano oil on my back to “cure” herniated discs (or let a chiropractor do his thing—a suggestion which made my physical therapist shudder down to her shoes!)—and I’ve been mis-instructed to eat lots of raw veggies and whole grain bread for my GI track issues which actually cannot tolerate much roughage.

A few years ago, I was so indoctrinated by the “nature-paths” (my own fault to let it happen!) that I refused a steriod inhaler for my asthma.  Finally the asthma was diagnosed as turning into emphysema (even though I’d quit smoking in 1963).  I had scary broncho-spasms, was sick all the time, and could easily have checked out—when finally a medical doctor talked sense into me and I began inhaling a steroid. 

This same doctor showed me that the multi “nutrients” and “supplements” I was consuming were making me even sicker, and were indeed dangerous to my health, whereas the lab-tested prescribed meds are safe!  I lived through that crisis, and have happily been a traditional medicine person ever since!

Now, 6 years later, I only need the inhaler occasionally—when I’m having a sinus and bronchitis flare.  Respiratory issues are no longer a serious threat for me, thanks to medication when needed.

11)  Don’t roll your eyes or get preachy upon discovering that your friend takes a doctor’s prescribed dosage of pain medication.  This is a typical reaction from people who have never lived with chronic pain.  Anyone who has, knows better!  A prescibed dosage can mean that we comfortably do our laundry, clean our homes, get dinner on the table, and enjoy a social time with family members or friends.  To avoid valid and much-needed pain relief is stupid.

That’s all I can think of at the moment.  I hope these pointers will help those who “want to help”!

Margaret L. Been, ©2011

Read Full Post »

“For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.”  2 Corinthians 4:17  (NIV)

God is faithful in all circumstances!  Since September 30th, 2010, Joe and I have been besieged with “one thing after another”—mainly involving a serious accident with our van for Joe and surgeries for both of us, but also in the area of pesky things like a large tree falling on an electric line at our up north home plus temperatures dropping inside that home due to a thermostat having been turned way down last summer.

The up north challenges were settled via telephone and our checkbook, although we had to wait until after deer hunting season to get help up there.  Seriously, we didn’t mind that.  The hunting and fishing culture is one of Northern Wisconsin’s many charms!  🙂

The health issues have not been totally resolved.  I am recovering from two major surgeries, very slowly.  The colon has healed, but fatigue and pain are givens for many months following a lumbar disc fusion surgery.  And I have additional severely herniated discs pressing on nerves, requiring PT and ongoing pain management.  (At this point I’m maintaining that pigs will fly and the pope will be Swedish before I’ll voluntarily have more back surgery!)

Joe’s 4th degree burn (can you imagine that?!) is actually healing beautifully.  The doctors are amazed, as a leg amputation was the initial prediction for Joe.  He is diabetic.  The fact that his multiple skin graft surgeries, and the donor* sites on his legs to provide skin for grafting, have healed is nothing short of miraculous—as along with being diabetic, Joe has clogged cardiac and leg arteries.

In the midst of grafting and healing, Joe has experienced his threatening angina attacks which frequently result in more stents in his coronary arteries.  The largest problem area has so many stents that it has been proclaimed full to the max.  Coronary artery disease and the required medications are a cause of fatigue and lethargy for Joe.

Then his left shoulder**, the shoulder that stopped our rolling HONDA® van***, has been torn beyond repair short of a partial or total shoulder replacement.  The bicep has severed 3 centimeters from where it is supposed to be, and the rotator cuff tendons are shot.  Old arthritis (from years of tossing tennis balls high in the air for Joe’s powerful right hand serve) is also present.  

So more significant surgery is in store for my man.  He is 80 years old, and at present very frail.  Just getting up for his meals (it’s a short walk from bed to table) makes a full day for Joe.  He has been given permission to drive short distances, and this has helped his morale considerably.  But each little trip, to Wal-Mart for a prescription or to our local clinic, wears him to a frazzle.

The visiting nurse no longer comes to change Joe’s wound dressing, and now I am doing that.  It gives me great pleasure to be able to care for the man I love.  I feed him nutritious meals with loads of protein, as protein is THE GREAT HEALER in the food classification. 

A huge responsibility of a caregiver is to remain cheerful and optimistic.  Only through God’s Grace can I do that when I am physically weary!  Without the indwelling Lord Jesus, giving me everything I need for each day on earth, I would have crumpled in a heap from discouragement and exhaustion weeks ago. 

Christ is sufficient for all our needs.  There have been times when I thought I could not move another inch or take another step.  But the Lord always reminds me, “You are not alone!  I am here to get you through the day!  In my strength you can keep on keeping on!”

Normally I dislike going into detail about medical things.  But I am doing exactly that today, to show where we have been, where we are (supposedly) headed, and how we are able to get through each day.  Joe and I have tremendous contentment, and we are experiencing an especially sweet time together in the midst of what some might consider impossible trials!

Meanwhile God has blessed us with loving family members, many of whom live close by.  We have help when needed with physical tasks like vacuuming, grocery shopping, and home maintenance.  What a joy to have children, grandchildren, and great-grandchildren pop in for visits!

And Spring is coming!  Soon the snow mountains will be gone, and we’ll be able to relax outdoors on our patio.  The blessings never cease, as we keep on keeping on!  🙂

——————————————————————————————-

*Unlike some body parts, skin cannot normally be grafted successfully from an external donor.  The body will reject someone else’s skin, so the donor must be one’s self.

**The shoulder has been virtually the only source of pain for Joe.  Amazingly, the 4th degree burn has caused very little pain.  With a burn that severe, the nerves are destroyed and the feeling is nil.  God’s Grace again!

***Joe thought he had left our empty van in PARK, but somehow it slipped into gear.  Joe walked in front of the vehicle as it began to slowly move forward—knocking him down and moving against his shoulder.  The burn was probably from the engine or exhaust.  A day to remember!  A day to forget!

Margaret L. Been, ©2011

Read Full Post »

It’s been a long time since I posted something new on this site!  In that time, my husband and I have experienced health issues heretofore unimagined by either one of us. 

These issues are debilitating and ongoing.  They will not go away, short of miracles defying God’s natural laws.  

A few weeks ago, I spent time on a chronic pain forum only to discover that lingering there was actually building a monument to pain.  The more I read about surgeries (either successful or failed), pain killers, and remedies (medical or alternative) the more weary I became.

I’ve convinced that to focus unnecessarily on health issues is silly—even stupid.  We need to take care of ourselves, do what is needed, and continue to celebrate life even if we have only a few things we can do each day.

What we can do, we do with thanksgiving.  What we cannot do need never discourage us.  In all circumstances, we can uphold the goodness of life and the wondrous creativity of every day. 

To the best of my ability, I will get on with life!

Margaret L. Been, ©2011

Read Full Post »

Those of us who live with chronic illness and/or pain tend to paste a big smile on our face no matter what.  We endeavor to keep our spirits up by focusing on things other than our challenged bodies.  The Lord is always ready to listen to His own, and we go to Him with our concerns.

Yet there are times we’d like to talk to a fellow human who has been wherever we are—someone who understands the ins and outs of chronic illness or pain!  The medical profession is here to help us with diagnosis and treatments.  But doctors and nurses are not here to “just chat”.  Only kindred spirited folks who share our special concerns, and have a bit of free time, can do that.

There is no way I want to discuss my medical issues with someone beyond the pale of pain.  There are people who know I have considerable health issues, yet will never ask about them.  I realize that some of these people are personally terrified at the thought of sickness and pain—and will go to extremes to avoid acknowledging that health concerns could even possibly exist!  I never air the subject of health, unless specifically asked “How are you feeling?” 

Then to most who ask that question I simply say, “It is well with my soul.”  This answer brings startled and puzzled looks, and we normally move on to another topic of conversation.  

I answer in that way, because I sense that the “How are you feeling?” query is simply a formality.  It’s a mark of concern and consideration, but most people don’t really want to know how I am feeling or what exactly is amiss in my body.  And I’m not about to tell them! 

Most people who have never experienced our health issues will not “get it”—even if we were to go into a lengthy medical explanation.  They operate on the philosophy of  “What you see is what you are”. 

These are the folks who will be the first to say, “But you don’t look sick”.  So why tell them we are sick?!  The blessedly healthy folks don’t get it—and they usually don’t want to get it.  Healthy people love to assume that a smile on one’s face and cheerful conversation indicate we are 100% okay!  They don’t perceive that the word “chronic” means chronic!

People who experience chronic issues understand that we often suffer without any external signs.  We don’t want to attract attention to our condition.  People never see you or me writhing on the floor or screaming with pain, because with a number 5 to 7 pain scale level we simply don’t writhe and scream.  We grin and bear it, and sometimes we take a pill.  (I once reached the 10 level with a blocked colon, and I had to go to Emergency.  Then I was writhing!) 

Occasionally we’ll run into a healthy person who truly is concerned, and really wants to know how we are feeling.  I know a few individuals who always ask to hear, in detail, about my lower back pain.  So I comply with a brief but comprehensive summary of exactly what is going on in my spine:  broad base ruptures and bulges on all the lumbar discs as well as on a couple of other discs (causing nerve impingement), many bone spurs, and some stenosis or thickening in the spine (among other issues with fancy medical names, which I don’t bother to mention).

But I’ve learned that it’s silly (and unkind!) to fault those who can’t listen, won’t listen, can’t understand, or won’t understand.  Most folks will never understand unless they have to walk in our moccasins—and we hope they never will have to do that!   

Thus we don’t talk to many people about our bodies.  Where then, do we go for understanding?  The web provides amazing resources, not only for information concerning whatever ails us (we need to be careful in choosing websites, making sure they are medically sound) but for forums where individuals share, and encourage one another. 

I have a fine Back Pain Support Group online.  There is no advertising on this forum, and the participants are courteous and compassionate.  Whatever your area of illness and/or pain, I hope you can find a helpful forum out there somewhere on the web, if not in your community!  And I trust that “all is well with your soul”!   🙂 

Margaret L. Been, ©2010

Read Full Post »

« Newer Posts